Jackson left recovery to ICU around 4:30. We were able to meet him at the elevators and go up with him. He looked so good! No more wires! Just a little head cap and a few drainage lines. They also have him off the ventilator. He is doing really well! The surgeon did say he would have a temporary weakness on his left side, but he is already moving his left hand.
Jack will be in ICU until tomorrow and then should be back in a regular room. We will be in the hospital another week, and then in Detroit another 7 - 10 days after that. We now hope for a speedy recovery!
Friday, October 3, 2008
Jackson is heading to Recovery
The surgeon came to tell us Jackson is closed up and everything went smoothly. He is going to recovery. We thank God for keeping our baby safe during this long surgery and for guiding Dr. Sood's team (and his hand) in the resection of the abnormal areas. We are so thrilled to have this surgery behind us. Now we have to get him feeling better!
They are going to extubate Jack and see how he does. If he has breathing difficulty, they will put him back on the ventilator for 24 -48 hours. Something tells me that he will be okay!
Again, thank you, thank you, thank you for getting us through this difficult time. We continue to pray for the miracle of a successful surgery.
They are going to extubate Jack and see how he does. If he has breathing difficulty, they will put him back on the ventilator for 24 -48 hours. Something tells me that he will be okay!
Again, thank you, thank you, thank you for getting us through this difficult time. We continue to pray for the miracle of a successful surgery.
Surgery Completed! - 2:30 pm
They have completed the MST and things look really good. The left over spikes were reduced dramatically. Dr. Sood is closing Jack now and he will be in recovery at 4 pm and back up to ICU by 6:00.
We are so grateful for all your continued prayers through this entire week. We feel so blessed. Please keep Jackson lifted in thought and prayer until he is in complete recovery. We hold faith that Infantile Spasms is a thing of the past for this special little boy!
We are so grateful for all your continued prayers through this entire week. We feel so blessed. Please keep Jackson lifted in thought and prayer until he is in complete recovery. We hold faith that Infantile Spasms is a thing of the past for this special little boy!
Final Surgery Update - 1:45 pm
The team just came to consult with us. They have now removed the entire parietal and temporal cortex. The readings on the EEG look good. However, there is still some large spiking coming from the motor sensory cortex involving his left hand.
They discussed proceeding with a procedure called Multiple subpial transection. MST is a treatment for epilepsy that may be an option when seizures begin in an area of the brain that cannot be removed; for example, areas associated with vital brain functions such as movement, sensation, language and memory. MST stops the seizure impulses by cutting horizontal nerve fibers in the outer layers of the brain, sparing the vital functions concentrated in the deeper layers of brain tissue. The surgeon will not be removing the motor cortex, but plucking the fibers that run horizontally and stopping the seizure activity. Jack will have a temporary weakness in his left hand up to 6 weeks, but will return to normal.
We have decided to go forward with this recommended procedure, because of the large spiking in this area. It should take 45 minutes.
They seemed to be really pleased with things! Please continue to pray that any left over spikes will not produce seizures and Jackson will be seizure free!
They discussed proceeding with a procedure called Multiple subpial transection. MST is a treatment for epilepsy that may be an option when seizures begin in an area of the brain that cannot be removed; for example, areas associated with vital brain functions such as movement, sensation, language and memory. MST stops the seizure impulses by cutting horizontal nerve fibers in the outer layers of the brain, sparing the vital functions concentrated in the deeper layers of brain tissue. The surgeon will not be removing the motor cortex, but plucking the fibers that run horizontally and stopping the seizure activity. Jack will have a temporary weakness in his left hand up to 6 weeks, but will return to normal.
We have decided to go forward with this recommended procedure, because of the large spiking in this area. It should take 45 minutes.
They seemed to be really pleased with things! Please continue to pray that any left over spikes will not produce seizures and Jackson will be seizure free!
Update Final Surgery - 11:15 am
Dr. Chugani came earlier and said the first incision occurred approximately 10 am. Jackson was doing good. He was getting his blood transfused and would keep us posted.
Then the nurse called at 11:15 and said Jack was stable. Dr. Sood was still removing the Temporal/Parietal Cortex. Not much more to report until the next update.
Then the nurse called at 11:15 and said Jack was stable. Dr. Sood was still removing the Temporal/Parietal Cortex. Not much more to report until the next update.
Pictures from Today before Surgery
These are from this morning before surgery. Included are some pictures of the head wrapping with all the wires that have been connected to measure his brain activity, so you can see how involved the process is. Following those are pictures of Anesthesia taking him down to the OR.
Pictures of Jackson
Here are a few pictures of Jackson from the beginning of the week. These are from Tuesday just before his first surgery getting his yellow scrubs on to ICU with his favorite "stuffed" support group.
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