2008 has come and gone...and we are so ready for 2009! Today, January 3rd, is 90 DAYS SEIZURE FREE for Jack! Can you believe it?!? 3 whole months! Jack has come so far in these 3 months that he has been seizure free. The infantile spasms took so much from him last year. Now that the seizures are gone...he has improved so much. He is really excelling in his physical and occupational therapy. We just know that he will continue to thrive! If you look at the pictures of him in the lawn with the ball, that is the right side where he had his resection. His incision has healed incredibly in this short amount of time...you can hardly see it anymore!
We just received his "electric green" gait trainer...which is a walker. It will help him to walk and provides the necessary support during gait training. I have been working diligently to get this walker ordered since July. Well, the place that we purchased the walker from...didn't actually submit everything correctly to our insurance until December 7th!!!! In order for it to go on this year's policy, we had to have it in our hands delivered from the manufacturer by the 31st. It was an experience..but it was ready on the last day of the year!!!! All worked out! You can tell by the pictures...he hasn't decided yet if he likes it too much, but he is determined. It is really only day 2 in the walker. Sonya his therapist will be back next week and she can show us how to properly use it with him. There are all sorts of attachments and adjustments. It will be great for him to get around until he is walking on his own.
We also ordered Jackson's glasses finally and we should have them on Monday. He looks like a little Harry Potter in them. They are very round rims! He will wear them in therapy and when doing things upclose like reading, etc.
2008 will be a year we will never forget...both bad and good. It was a tough year! If I had known from the beginning what all we would have to face, I just don't know if I would have been able to handle it. However, I have learned that it is not for us to know or to control, but to believe and trust in God that He will bring you through whatever faces you. He did...and this past year has made us all so much stronger in many ways! My sister, Maggie, once gave me a card years ago and the quote on it said, "Courage is fear that has said it's prayers." This quote has stayed meaningful to me. It is incredible to look at where we are today...compared to a year ago...and what all happened between then and now. We thank God for all these blessings!
This past year we have also gained wonderful friends going through similar situations with their children and Infantile Spasms. Your kindness and support helped us immensely and still does. Thank you to everyone who prayed for Jackson and kept up with him....it made the difference and kept us lifted up through the difficult times. We have been so touched! We especially thank our loving family...who have given us support and encouragement..and were there by our side.
We look forward to the all the possibilites for Jackson! We hope everyone has a happy and blessed New Year ahead!
2 comments:
Cute pics!!! I can see why Jackson wouldn't be too thrilled by those arm restraints!! I would try it without them. Amazing that it's already been 90 days seizure free! Such a miracle!
Jackson, you are looking just GREAT!! congrats on the 3 months seizure freedom. We couldn't be happier for him ( and for yall too)
Isn't it amazing how fast these kids learn new skills without those stinking seizures in the way?? He is just amazing
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