Thursday, October 23, 2008

Our last night here!

First of all, I am happy to say that my new beautiful, baby niece, Emma Claire Wyss, arrived all safe and healthy today! She was born at 4:00 am and weighed 7 lbs. 3 oz., 20 inches long. We are so happy for Molly and Dave in welcoming their first baby! I know they are going to be incredible parents! We can't wait to see lil' Emma on Saturday in St. Louis.

Jackson and I are so excited to be heading home! We are all packed and ready to go tomorrow after therapy. My sister, Maggie arrives about 1:45 and then will come to the hospital. We will probably get on the road by 4 pm and travel for a few hours.

Jack has been great since my last post. We have not had any more crazy events. I really pray that was a one time occurrence. We had the same nurse last night that was there when it happened, and she said she will never forget Jackson! ;-) All the nurses, therapists, doctors, residents...are so good to him and are all sad to see him leaving. (even though it's a good thing.)

Dr. Chugani came in for his last visit yesterday to say goodbye, because he was heading out of town. He thinks Jackson looks great and is so pleased with his progress to date. We will return for a follow up visit in 6 months, but will keep in touch between now and then. We are so appreciative to Michigan Children's hospital and Chugani's team for the huge role that have played in the healing of our son. Our entire stay has been top notch...(well except for the food.) The staff is caring, professional, and their attentiveness is unmatched.

What a long road it has been for Jackson. Definitely a roller coaster of events and emotions, but we are so thankful for the end results. We do have a long road ahead with recovery and catching up, but I believe that Jackson will achieve greatness! He already has! I have never been one to listen to statistics, even though I have been told time and time again by some doctors. I am a huge believer in "With God all things are possible." To me it is so important to stay positive...and never lose HOPE! (even though we have had our moments.)

Also, "thank you" simply does not convey the amount of gratitude we feel to all of our family, friends, and complete strangers who have supported and prayed for Jackson. It has been overwhelming to see so many people be so generous, kind and encouraging to us this past year. Not just during the surgery, but from the beginning when Jackson was diagnosed...there were so many wonderful people that prayed for Jackson and even placed him on their church prayer lists and kept them updated throughout his journey. We can never thank you enough! Prayer and support is what has carried us through this past year! We could not have done it without the help of others. If you have prayed, sent a message, emailed, called or checked in on us, I just want to know how much it has meant to both Tony and I. From the bottom of our hearts, we will never forget the love and support that you have given us and our son. Also, I am so not a natural "blogger," but I do appreciate you visiting Jackson's journey through surgery and recovery. I decided to do this blog last minute from my friend, Tera's, suggestion. I was scared to death to really post anything about what was going to happen, because nothing was for sure. However, I knew a lot people were concerned and that if I could keep everyone updated then it would be that many more prayers going out for Jackson...so I took a "leap of faith" and am glad I did! So thank you....

I will try to post some pictures of Jackson tomorrow before we leave. I didn't get a chance to take any today. We thank God and each one of you for your prayers. We feel so blessed as we leave Detroit seizure free!

2 comments:

Chad and Crystal said...

Wow! What a journey! I hope you, Maggie, and Jackson have a smooth road trip back home ... and kiss baby Emma for us! Love you guys!

I can't wait to see Jackson...give him a kiss for us too!!! He is just a living testimony to God's goodness...what a blessing!

Anonymous said...

Safe travels home! I am so happy for your family and Jackson's new start! Thanks for keeping us posted on Jackson's progress. Much love,
Tonja