So far so WONDERFUL! Jackson was diagnosed with Infantile Spasms on December 1, 2007. He has had countless seizures everyday of his life for the past 11 months. Well, today we can say the past 2 days have been SEIZURE FREE! We don't know what tomorrow may bring, but we are not even going to look for it. We are going to look for all things positive and continue our road to complete recovery!!!! We feel so grateful and blessed, and look forward to what God has in store for our little man.
There are so many children that are affected by this catastrophic form of epilepsy. Like most, we never heard of Infantile Spasms until our baby was diagnosed, but after researching and learning, it is incredible how many kids have IS. We pray the same wish for all the IS children, as we do for our son and that is to find their answer to be Seizure Free and overcome this neurological disorder!
Jackson is still sleeping a lot, but waking some to eat and watch TV. I will be glad when he is able to have the drain removed from his head and the the catheter out. I think he will be a lot more comfortable. We will continue to keep you updated! Thanks to all!
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11 comments:
I am so grateful for this update and know only wonderful things are ahead for Jackson. We love him and can't wait to see him in a few weeks!
What a wonderful update! I am so happy for you!! Continued prayers for a lifetime of seizure free days to come!!
God works in wonderous ways. All our prayers are with you.
Beverley
What incredible and wonderful news to read this morning. I am so very happy for Jackson and your family. Two seizure free days...what a great start. I will pray that this great news continues.
I've been following your story...but my heart has been hanging in this place where I just don't even know what to say...afraid that it might come out wrong! Ugh! But I'm truly truly thrilled that you've celebated two days SF! And SO hoping this is just the beginning! And btw...if we move towards a place where surgery is an option for Trevy... just might be hitting you up for advice! *smile*
...danielle
Who could ask for better news.What elation you must feel.What sheer joy to have 2 seizure free days!What an absolute miracle.We continue to pray for Jackson's continued recovery and news that you are all heading home.
That is wonderful! How precious to hear that he is seizure free for the first time in his life. Praise God for answered prayers! I look forward to hearing more and more praise reports concerning Jackson! We are so happy for you!!! You all are so deserving for good news!!!
We are so glad Jackson is doing so well and that you are able to hold him. I know he loves hearing you voices. Our prayers will continue for him and the entire family.
I'm so happy hear that Jackson's surgery went well and that he has been seizure free for 2 days. I will continue to pray for you all and Jackson!!!
love,
Jen, Brian, and Drew
Meghan I am so happy to hear that Jackson is doing well. Your family has been in my families thoughts and prayers ever since I heard about Jackson. I will continue to pray for his continued recovery.
Korey Schuelke
Our sweet, sweet nephew - so thankful you have had 2 days seizure-free big boy!! We all love you so much - you are our HERO!!
Unkin Kyle, Auntie Gigi, Kirsten and Mason
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