God is Good

We received our first Miracle! Dr. Chugani came in this afternoon to the ICU and told us that what Jackson experienced last night was NOT SEIZURES! Our prayers were answered!!! I wish someone could have told us that last night...that is the frustrating part because it was such a nightmare. However, today we are ever so grateful!

Dr. Chugani thought the Dilaudid caused an agitating reaction, along with the motor mapping he had earlier in the day. He said Dilaudid can be very potent and can cause hallucinations. Plus they had many other drugs in his system. These "episodes" began 20 - 30 minutes after receiving the drug. Jackson just woke up gasping for air and his oxygen levels went low. The next thing we knew an entire team was around him and said he was having an acute seizure. It was hard for me to tell what he was doing exactly, because his hands were tied to the bed rail. He just seemed to be moving in every direction. They finally got his oxygen levels back up and stabilized. Then he had another breathing "episode" and another. This lasted for about an hour. We were just beside ourselves, wondering how we could have done this to our baby!

The rest of the night he looked miserable. Completely out of it and thrashing around. He never rested. Around 4:30 am they decided to intibate him to allow more sedation and testing. The sedation was effecting his breathing on his own. They also did a CAT scan to make sure there was nothing unusual detected with his brain. Everything ended up coming back normal on the scan.

All we were praying for was to have our son back! It was heartbreaking to not know what is causing him to be in so much pain. They even had a Chaplin stay in the room with us (which honestly scared me when he showed up at his bedside) , but he stayed with Jack when he was transferred back to ICU and kept us informed. It was really nice to have someone praying over Jackson the whole time.

We are just so happy that those were not new seizures he was experiencing. We just wish they could have had the Doctors during the night to read the EEG to tell us for sure.

He is resting now in the ICU. They will keep him hooked up to the ventilator until after the surgery tomorrow, even though he is breathing on his own. He has opened his eyes a few times, but mostly sleeping finally! I know we have mentioned before that Jackson is a strong boy, but we just didn't realize the amount of strength within that little body until witnessing what all he went through last night.

Again, we can't thank you enough for all your prayers, and we know God answered them for us last night. We trust that He will answer our prayers for seizure freedom after tomorrow.