Tongue Issues?

We are so grateful to have another day and night with no seizures! What a miracle for our son!

Jackson is still a little uncomfortable and uneasy when he is awake. Still to be expected after a major brain surgery. We didn't get a lot of sleep last night, because his latest IV was causing the alarms to go off constantly. I think they finally corrected it this morning!

He is having some issues with his tongue now. He gets a bottle down fine, but the eating is more difficult. He has never had problems eating before. I started him with some oatmeal and baby food, so he would not choke. He just kept it on his tongue and had difficulty shifting it to the back. He did finally swallow, but it was not natural. Also, as you can see in almost every picture....he loves his pacifier! He won't take it anymore!!!!

His Neuro was in and said it could be caused from the swelling of the brain. Also, the MST procedure on his right motor strip could also cause this effect around his mouth temporarily.

They ordered a Speech Therapist in for an evaluation this morning to evaluate. A baby's brain has so much elasticity that when a part of the one side is removed, then the other side will take over. It can take time, but no one seems to be alarmed by this. He wants to give it a few days.

Also, he is going to take Jackson off 1 of the 4 meds because he is so sleepy. Topamax will be gone!

Thank you all for keeping him in your continued prayers for a smooth recovery and seizure freedom!