Jackson continues to do great post surgery! He had a full day. Neurosurgery removed his EVD tube, which was placed in the ventricle of the brain. It was a drainage system to keep the fluid balanced, pressure low and even reduce possible fever post surgery. He had to get 1 stitch when it was removed, but he didn't fuss too much.
He is now going to be on all oral meds, so the IV will be out tomorrow!
He is also checking out of the 5th floor and moving to Rehab in the morning. The therapists came to work with him today, and they are impressed by how strong his left side is post surgery. He pretty much has equal movements on both sides.
Jackson does get exhausted easily. If he eats, then he needs to sleep. So you can imagine a workout with the therapists really puts him out.
It has just been amazing to see Jackson wake up and not have a seizure! Usually, his spasms (seizures) would occur in clusters after waking from sleep or naps. I would always have to go slowly with him...letting him relax and wake up. (not that my method ever worked!) These therapists just woke him from his deep sleep, immediately made him get on the mat and do exercises. I was just watching him and thinking about how we have dreamed and wished for this day for so long, and now it is becoming a reality. He was doing simple things without hitting his head on the floor from a strong spasm, or on the table or one of his toys. As some parents know all to well, it is emotionally and physically exhausting to watch your child do this every single day. When you go through something like this, you learn to appreciate the little things in life and every small development. This past year has not been easy, but we have learned to never take one little thing for granted! I know he is lucky! I know our prayers were answered!
We continue to be so thankful to God and look forward to each new development in Jackson's life!
10 comments:
Sounds like a good day. Oh to have a day without seizures. Therapy uninterrupted (except for the napping). I know how excited you must be about that!! I hope that day comes for us too.
God is so good.
What great news about your little man. He will continue to get stronger daily.
Nita
The picture of him looking at you is priceless....I know he will do so well in therapy!
Love
Molly
What an amazing few days. I know you guys must be so excited.
You tell him that his honorary uncle Blake has given his mommy that exact same look many, many times on Highway 80 to San Marcos (and when she's trying to fix me up with ummmm......"other uncles" in Cafe Adobe).
We can't wait to see him in November!
Jackers looks awesome! He seems really alert. It's amazing that in less than one week he is already being discharged to rehab! He truly is our "champ"! I know he will be more comfortable now with out the drain and IV :) Give him hugs and kisses from the Kelley gang.
we are very excited to see Jack doing so well. We continue to pray for him.
truly awesome!! Praying for continued successs. How great it is to be seizure free!!!
OK - I just have to post another comment!!! I laugh everytime I see that pic of Jack looking sideways at you - he's so funny and getting back to his old self!! I also love seeing him hug and hold his little giraffe....I know it is his "comfort" and has been throughout the last year. Love you all and call when you get a chance - Aunt Gigi
What great pictures! We all had to check in on "Little Jacks" today. Praying every day. Micah and Payton pray that "he will not be nervous" and that "he will be better" and that "he will not hurt". Miracle boy.
-Riki
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