Wednesday, October 1, 2008

Update on Day 2 after 1st Surgery - 7:30 pm

We are now out of ICU and in the Video Monitoring room until Friday. Jackson made it to this room about 1 pm. He was still sick this morning and not able to keep anything down. They have kept him feeling pretty good all day with meds and sedatation. He is also real itchy around his nose and forehead from the turban mesh, swelling and the morphine.

The EEG team came at 1 o'clock to do another Motor Mapping part of the diagnostics for surgery. They hooked up machines that sent electrical currents to the grids located on his brain. In response, they look for movement of that particular area of the body that they are targeting. The purpose of finding the motor cortex is so that during surgery they know what functions they are working around as they do not want to give Jackson a deficit. It sounds really awful to send electrical currents to your child, but they said there is no sensitivity in the lining of the brain. He actually slept through the whole process. Once they send the signal, if it is connected to a motor function then that part of the body will move, such as the hand, leg, throat, mouth, etc. Nothing moved on Jackson, so the test did not work on him. However, they said in babies that are 1 to 2 years of age, it is very common to not get results on this particular test because they are so young. If the children are older, they always get results.

As far as detecting the motor cortex, they did another anaylsis yesterday when he was in recovery. They are sure of the motor area now, but this test today was just another way of double checking.

After he was settled, I went to nap from 2 - 5 and showered! That is why I am late on updating the blog.

This evening Jackson is still a little fussy, but does have some of his spunk coming out. He has kept juice down and seems to be feeling better with his nausea. He started talking again to his Daddy and making little sounds. He is still in pain and we are trying to find something else beside the morphine to help him. It makes him really want to itch and grab.

We are staying positive and have full faith in God and this team that Jackson will pull through this with flying colors! He is such a trooper!

Tomorrow morning is when they will give us the results of all the data they have collected. We will discuss the areas of removal with the entire team and will have a good idea about Friday's surgery by tomorrow afternoon. Please pray that they have gathered all the data they need, and their findings will benefit Jackson to complete recovery! We are expecting miracles...and nothing less!

We cannot thank you enough for all your support. Your prayers are helping him so much!!

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