Jackson is still doing great. He was able to get his incision sutures removed yesterday. He did not even cry out once the whole time...and there were so many to cut and pull! His incision is healing nicely.
He has had another 2 full days of therapy and seems to be adjusting to the long schedule. In therapy he is already doing some things that he hasn't done before, and some things we are still working to get back. It all has to do with his temporary left sided weakness from the surgery, but he is picking up more and more each day.
Dr. Chugani and the doctor over the rehabilitation unit would like Jackson to stay longer in inpatient therapy. They feel this is a crucial time for Jackson and that if he could get intense therapy longer, then he would benefit even more. If we were to go home now, he would not be able to get as much therapy in a day or week in Houston. So, we will be staying until Friday, October 24th! It is longer than we anticipated!!!...but we will do whatever is best for Jackson.
This new date means my Mom and Dad will leave me on Monday. My Mom will go to St. Louis to be with my younger sister, Molly who is due next week! She is having her first baby...and we can't wait for Emma to arrive. My Dad will fly back to Austin. Originally, he was going to drive back with me, but since we are staying longer he must get back to work. So my older sister, Maggie, is flying up on the 24th and will drive back to Texas with Jack and I. Should be a road trip to remember with the two of us! We will stop again in St. Louis to see our new baby niece and Jack's new cousin on the way. ;-)
Yesterday, we had the pleasure of meeting another family here in Detroit for testing to see if their daughter is a surgical candidate. They actually live in the St. Louis area...not too far from Molly and Dave. Sophie is 3 years old and is a precious little girl. She has been able to develop really well and do so much despite having Infantile Spasms, but she still has many seizures a day! Please keep this little one and her family in your prayers too. Please pray that they receive the answers they hope from the testing for surgical candidacy.
We continue to hope and pray for Jackson's complete recovery. Thank you for checking in on his progress!
4 comments:
Woohoo! Can't wait for our road trip next week - you know it will be one to remember with Auntie Gigi behind the wheel : )
I know you are so anxious to get home, but I know this inpatient therapy will be so beneficial to Jackson! He's made such great strides already.
I'm counting down the days until the 24th. Love you all bunches!
-Maggie
Jackson looks so great! I know you are ready to get home and get back to being a family, but stay strong! We continue to pray that this therapy is doing just what Jackson needs for a full healthy recovery! Can't wait to see you VERY soon!
Love you,
Molly
We are all very pleased about Jackson's progress. It is truly amazing.
I would like to call on all those who read this blog to now add a few more prayers for the Big J as he will most definitely need them given this "road trip" he will have to endure beginning next Friday. Just when he/we thought the worst was behind him!! I hope there is a video camera rolling so someone can capture him getting out of the care and actually kissing the ground in Houston.
(No signature needed)
It makes my heart so happy that your family is coming to your side! I've been SO blessed to have my mom & dad accessible...mom drops everything at a moments notice so I can run to the hospital...or whatever Trevy needs! Our family bond has definately strengthened through this past year! And it's just really sweet to see another family doing the same!
...danielle
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